Author Archives: Paul Tarini

Entrepreneurs and Underserved Communities: StartUp Health's New Accelerator

Feb 18, 2014, 8:00 AM, Posted by Paul Tarini

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The past few years have been marked with a surge in health care business accelerators—programs that provide support to help health care entrepreneurs develop their ideas and raise initial funding. In tracking the success of these innovation hubs, we realized something was missing.

On the complex journey of taking a health care idea to market, most entrepreneurs aren’t seeing underserved communities—the people and the providers who serve them—as target markets. The result is that health care innovations are passing by some of the communities that could benefit the most from innovation. But what if we could help entrepreneurs see these patients and their providers as a viable market? What if we could make it easier for health care businesses to design solutions for the needs of our most vulnerable populations?

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Engaging Patients in Research

Dec 3, 2013, 8:00 AM, Posted by Paul Tarini

What happens when you engage patients in research? That’s a question RWJF is exploring with grants to Sage Bionetworks and PatientsLikeMe to build online, open-source platforms that give patients the opportunity to contribute to and collaborate on research.

Sage Bionetworks’ BRIDGE platform will allow patients to share and track their health data and collaborate on research into diseases and health problems that matter most to them. Three research projects will be piloted on BRIDGE in the coming year, focusing on diabetes, Fanconi anemia and sleeping disorders.

PatientsLikeMe’s Open Research Exchange (ORE) will give researchers and patients a space to work together to develop health outcome measures that better reflect outcomes that are meaningful to patients. After several months building the ORE, PatientsLikeMe is now in testing mode, putting the platform through its paces. But it’s not just an academic exercise. PatientsLikeMe has recruited four researchers to pilot the ORE. These researchers will be providing feedback on the site while working with patients in the PatientsLikeMe network to develop and test an initial set of health outcome measures.

Sage Bionetwork’s Stephen Friend discusses collaboration between patients and researchers

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What's Next Health: Moving Into a World of Exponential Change

Jun 21, 2013, 8:00 AM, Posted by Paul Tarini

Senior Program Officer Paul Tarini Senior Program Officer Paul Tarini

Each month, What’s Next Health talks with leading thinkers about the future of health and health care. Recently, we talked with Daniel Kraft, medicine and neuroscience chair at Singularity University and executive director of FutureMed, about the potential of exponential technologies to accelerate change. In this post, Senior Program Officer Paul Tarini reflects on Daniel's visit to the Foundation.

When we look at new technology, especially health care technology, we often ignore expense for the excitement of the new. More than one paper has been written citing new technology as an underlying driver of rising health care costs. 

Some of this is the result of the problems we want our technology to solve. We tend to lean toward developing and employing new technologies that are “heavy” interventions against a particular disease, and those technologies are more likely to be expensive.  

But when you start looking at technologies that are more about helping people live healthier lives, more behavioral, more wellness facing, these will likely be less expensive and their impact will be more exponential.

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Dispatches from Datapalooza: Conversation After Conversation

Jun 7, 2013, 3:29 PM, Posted by Paul Tarini

Pioneer Senior Program Officer Paul Tarini at Health Datapalooza IV Pioneer Senior Program Officer Paul Tarini at Health Datapalooza IV. Photo by Saad Zafar.

From: Paul Tarini

To: Christine Nieves, Beth Toner and Thomas Goetz

Date: June 7, 2013

Thomas, I agree with your description that Health Datapalooza is the place to be. For me, this year's conference was a great experience and offered a really rich environment for networking. At RWJF's booth and throughout the conference, I had conversation after conversation with a range of people who are interested in liberating data and using liberated data. I talked with researchers, entrepreneurs, health care providers, people from state and federal government, and representatives from large corporations. It was really quite impressive.

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Dispatches from Datapalooza: The New Frontier in Health

May 30, 2013, 8:00 AM, Posted by Paul Tarini

Paul Tarini

From: Paul Tarini

To: Christine Nieves, Beth Toner and Thomas Goetz

Date: May 30, 2013

I'm looking forward to my third Datapalooza conference next week. In many ways, data is the new frontier in helping people lead healthier lives and improving the quality and efficiency of care. I enjoy Datapalooza because it helps us see the current edge of this new frontier—from what data are available and what data people are trying to access, to new ideas about how people are using the data, whether it's for policy or for products and services.

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